Documenting TBI for SSI/SSDI
TBI Advocacy Organizations
Brain Injury Association of America, 800-444-6443: The BIAA’s website has information for consumers and professionals concerning brain injury consequences, resources and prevention.
Brain Injury Association of Maryland, 410-448-2924: Maryland’s BIAA affiliate offers information and referral services for individuals with brain injury, their families and for professionals. BIAM has a library of information and sponsors an annual conference on topics related to the field of brain injury.
National Association of State Head Injury Administrators, 301-656-3500: NASHIA’s efforts are aimed at “assisting state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families.” NASHIA offers information on a variety of brain injury related topics including domestic violence, employment and veterans for free. NASHIA also has many publications, CDs and Webcasts on a variety of brain injury related topics available for purchase.
TBI Research Institutions/Products
The Brain Injury Guide & Resources, A collaboration of the Missouri Department of Health and Senior Services and the MU Department of Health Psychology: This online resource is an excellent source of information for individuals living with brain injury, their families and human service professionals who are not brain injury specialists who wish to increase their knowledge and understanding of brain injury and its impact on a variety of populations including the impact of brain injury on the elderly and athletes and on families.
Ohio Valley Center for Brain Injury Prevention and Rehabilitation, 614-293-3802: The Ohio Valley Center is one of the TBI Model Systems research centers in the country. John Corrigan and his colleagues conduct research and publish on a variety of topics including TBI and substance abuse, domestic violence and employment. The Center’s website provides information and tip sheets appropriate for professionals as well as consumers and families. This year, OSU added additional content for professionals working with individuals living with TBI, with a page entitled, Ask an Expert About TBI. This site offers information specifically designed for community services providers. On the site, you can watch the Aging and Disability webcast featuring Dr. Corrigan.
National Resource Center for Traumatic Brain Injury: Developed by the Medical College of Virginia and Virginia Commonwealth University. This website has resources for both professionals, individuals living with brain injury and their families.
The UAB Home Stimulation Program: This program, created by the University of Alabama Traumatic Brain Injury Model System, offers many activities for use by individuals with brain injuries, their families and the professionals who work with them. The activities are designed to help support cognitive skills and can be done in the home setting.
New York Traumatic Brain Injury Model System, Mount Sinai Medical Center: Mount Sinai is one of the TBI Model Systems programs as well as houses the Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions.
The Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries, or birth injuries. Cerebral palsy occurs as a result of brain injury sustained during fetal development or birth. The group is dedicated to providing information, material, and resources that are available to both families as well as those who have been diagnosed with cerebral palsy, and have extensive information about cerebral palsy, treatment options, and support.
The Job Accommodation Network: This site offers useful articles dealing with employment after brain injury. Information can be obtained regarding individualized workplace accommodations and strategies that can be used to maximize success on the job. A service of the U.S. Department of Labor’s Office of Disability Employment Policy.
Mayo Clinic Guide, “Understanding Brain Injury, a Guide for Employers.” Intended to provide an overview of brain injury and suggested strategies employers can implement to support those living with brain injury in the workplace.
Brain Injury Association of New Jersey, Inc., “Returning to Work After Brain Injury, a Strategy Guide for Job Coaches.” Good overview for employment specialists working with individuals with a history of brain injury. Provides concrete strategies for cognitive, behavioral and physical issues that may pose barriers to success in the workplace.
Brain Injury Partners, Advocacy Skills for Families: Offered through the Oregon Center for Applied Science Inc. This site provides coaching and tips for families seeking to advocate on behalf of their family member living with a brain injury.
Brain Injury Resource Center: Good resource for memory aides and tips for utilizing strategies to maximize independence at home and in the community. This website is consumer centered and has a number of worksheets available to download for personal use.
Continuing Education and Technology Resources
The Michigan Department of Community Health, Web-Based Brain Injury Training for Professionals: This free training consists of 4 modules that take an estimated 30 minutes each to complete. The purpose of the training is twofold, to “ensure service providers understand the range of outcomes” following brain injury and to “improve the ability of service providers to identify and deliver appropriate services for persons with TBI.”
Lash and Associates Publishing/Training: This website offers information primarily on brain injury in children and adolescents. Lash publishes many tip cards and publications on related topics such as school reentry after brain injury. The website does offer some articles that can be downloaded for free, however the majority of the products are for sale.
Military Based Resources
A Head for the Future: This new online resource from the Defense and Veterans Brain Injury Center is an “initiative designed to promote traumatic brain injury awareness, education and prevention.”
Brainline: This website, funded through the Defense and Veterans Brain Injury Center, offers civilians, returning service members with brain injury, families and professionals a variety of information and resources regarding life after brain injury.
Defense and Veterans Brain Injury Center: Available at this website is a useful resource for clinicians: “The Co-occurring Conditions Toolkit: Mild Traumatic Brain Injury and Psycholological Health, concussion, posttraumatic stress, depression, chronic pain, headache, substance abuse disorder.”
The My Healthy Vet: This is the Veteran’s Administration’s online personal health record for veterans, active service duty service members, their dependents and caregivers.
Americas Heroes at Work: This U.S. Department of Labor website page assists veterans with TBI and PTSD. The site has information about brain injury that can be applied to civilians. It is geared towards potential employers and can be used when educating an employer or potential employers about brain injury.
Traumatic Brain Injury: The Journey Home: This site, of the Defense and Veterans Brain Injury Center, is an interactive video with accessibility features (e.g. option to enlarge the print) for families, professionals and individuals with TBI. Offers detailed pictures of the brain with descriptions of each part of the brain’s function.
Domestic Violence Resources
The Centers for Disease Control and Prevention, National Center for Injury Prevention and Control: The CDC offers information and educational resources including materials for physicians and coaches on concussion and concussion prevention.
Children & Youth
LEARNet: This website, created by the Brain Injury Association of New York State, is geared towards children, parents and teachers to help children with brain injury navigate the classroom. Much of the information provided and strategies suggested are applicable for adults at home, community and work.
Colorado Kids Brain Injury Resource Network: Although this website emphasizes resources in Colorado, there is very useful information for parents and educators as well as this terrific educational animated video for school age kids on how to take care of yourself if you experience a concussion.
*We sincerely thank Anastasia for her work in sharing information about brain injuries with the SOAR Community. She can be reached at Anastasia.email@example.com.